Friday, 3/27/2015

I’ve received contradicting correspondence from the Health Insurance Marketplace dated 7 days apart from each other.  One said that our credit had been adjusted.  The recent one tells me that we’ve been denied and have to reapply.   Say what????  After 15 minutes on hold, I spoke with someone that double checked with someone else and was told all was fine and that the new credit is correct and we are still covered by insurance.  I thanked her for jump starting my heart today, but was very thankful that after being on hold, all is fine!!

Yesterday was errand day; post office, bank, grocery store, pharmacy, quick stop at the outdoor mall & filling up the car with gas.  We did everything, except the pharmacy, before the grocery store, I was wiped out half way through the store.  I was walking slow, thankful for the cart, as it was holding me up along with moving me.

Later that night, I started reflecting on my day and also remembering the rheumy’s paperwork that I completed.  It asked on a scale of one to three, how is your difficulty and it had a list of things.  I answered one as the least difficult.  As I was reflecting, I was wondering if I answered that wrong or if I’ve gotten worse within a month. I asked my hubby this question and he said that I do get tired quicker.  There are things that I have difficulty doing and some I let someone else do.  I go back to the rheumy on Friday. 4/10, so it will be interesting to see what the tests show how I am doing?

Sorry I’ve been so lax on the postings.  I haven’t had any motivation to write … anything.  But a friend, S4L, reminded me today that I should write again and that if I wait for motivation, I won’t write again.  You know what, she’s right, so here I write … lol

Life in the flat lands has been fine.  It’s starting to warm up and feeling springy.  It wasn’t much of a winter, which I’m thankful for, however, it doesn’t help with the dry conditions.  There have already been several wild fires, which is strange.  When we lived here before, it was so moist out, there were no wild fires.  Weird to come back to a dry Midwest.  It will be interesting to see what the summer will be like, however, I can wait to see that and just enjoy the temps that are now.

On St. Patrick’s day, we picked up our grandkids from school in our green van.  My hubby had a tee shirt with a green plaid vest & bow tie screen printed on it, in addition to wearing a green bow tie.  I had on a green sweatshirt with green shamrock clips in my hair and green beads.  Our grandson made it to the van first and said, “Whoa, that’s a lot of green you’re wearing!”  As our granddaughter was tied up and taking longer, hubby got out of the van to wait for her.  The car behind us saw him and started laughing at the getup.  She finally arrived and tried not to react.  Darn, she’s getting to that age where she tries to not react to the crazy things we do.  I guess we’ll have to try harder!!

My oldest sister has me hooked on National Geographic’s Live Wild Safari, which is online twice a day, morning and night drive.  You can only watch it online through the live feed.  As I won’t ever physically be able to go to So. Africa to go on safari, it is so much fun to watch, when I can and when there is no problem with the feed, the wild animals they come in contact with.

There have been several leopards they follow.  They are such beautiful kitties!  One has quite the personality, while the other that is the same age, just ignores the vehicle & camera.  They walk right next to the vehicle and just look at the guide.  The one with the personality actually charged the vehicle and stopped close, just because he could.  It even looked like he was chuckling after he did it.

Today they went to the hyena den and found the mom and three cubs.  It was late afternoon there and starting to get dark.  The mom was getting ready to hunt, leaving the cubs at the den.  The guide said they were going to leave the cubs as they didn’t want to call any predators attention to the cubs while mom was gone.  They were so cute.  Before mom left, one of the babies walked right up to the vehicle and looked at the camera.

One never knows what will happen on each drive.  If interested, the live feed is from 10am – 1pm Eastern time and 12am – 3am Eastern time, everyday.    It is quite fun as you can interact with the driver/guide through twitter or email.  Click here if you’d like to check it out.  During off hours, they run a loop of what is seen on that day’s drive.

Watching these animals and how they survive as part of the food chain, I’m reminded of a passage I read this morning:  Matthew 6:25-34 – Do not worry.

25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Can any one of you by worrying add a single hour to your life?

28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

We humans are much more valuable to God than any bird or animal.  If we truly follow Christ and have Jesus in our hearts, there is no reason to worry about anything as He provides.  The question is, can you surrender and wait in faith for His provision?

Sunny Sunday

It is nice to have a sunny day outside.  I was out in it yesterday as our granddaughter had a volleyball tournament.  She’s becoming a good player and along with a good player comes the struggle of being hard on herself.  Her dad is really good at talking things through with her.  It helps that he talks and not yells.  I was thinking how proud I am of the man and father he’s become.  I couldn’t ask for anything more!!

Our fridge went out (the bottom part not the freezer).  My brain registered on Monday that the fridge didn’t seem to be cold, but I was cold and figured it was me.  It wasn’t until hubby asked me on Wednesday night if I thought the fridge was cold, did I remember my thought on Monday.  We called our landlord on Thursday and someone was out on Friday fixing it.  Unfortunately we lost all that was in the fridge.  Yesterday, we went out to replace most of the spoiled items.  It’s frustrating but that’s the way it goes.  I’m thankful that it got fixed and we were financially able to replace those items.  If we were thinking, on Monday, we could have moved everything to a cooler and put in the garage as it was quite cold out there!!

I must admit, I’m ready for spring.  I saw how bad Northern Nevada got hit with 130-150 miles per hour winds.  It tore up trees, roof tiles, etc.  I feel bad for the cleanup that is going on, however, it looks like they are ok.

My arms have been screaming lately.   I only have 1 pain med left and I’m saving it until it’s completely unbearable.  I go to my new rheumy on the 21st (I think that’s the date).  I can’t wait!  It will be interesting to see what she tells me as my other rheumy had only seen about 5 cases, while this new one has more.  Hoping that she’s more informed on this disease.

Our van is doing good, even though we haven’t driven it much.  With the snow this past week, we tend to stay home until the streets dry up.  The weather is supposed to be good this week so hopefully the snow will be gone.

That’s all we’ve been up to.  Hope you have a great Sunday!!!

No longer carless

I’m so excited that we will no longer be car-less.  We’ve purchased a van and hopefully will pick it up today.  We are just waiting for them to call us when it’s done being looked over and detailed.

This past weekend I went to a volleyball tournament and a wrestling tournament.  It was fun watching the kids do their thing.

Last night we went to the science fair at the grandkids school.  It was fun and interesting.  Hubby even ran into someone he knew when we lived here before.

This weekend we will be celebrating the youngest grandbaby’s birthday.  It was postponed from last weekend as the baby was sick.  Poor thing … I’m glad she’s feeling better now.

The weather here has been unusually warm.  I’m not complaining as it’s nice to go outside not bundled up.  However, it will change with snow expected on Saturday.  The weather in the Midwest is just as hard to predict as in the Sierras.

Today is the 20th day of being on antibiotics.  I feel better, however, caught a cold on Monday.  I still have the annoying cough from a month ago.  Ugh, when is that going to go away??

Well, that’s my exciting life.  How are you all doing?

 

Happy New Year, 19 Days Late

Wow, was November really my last post?  Well, the old house got packed, the truck got loaded, thanks to many amazing friends and we drove half way across the country thanks to our son!!  Also Thanks to our oldest daughter for letting us crash at her house along the way!

We found ourselves in Nebraska, Homeless, Car-less and Jobless.  It’s a weird feeling when everything you own is in a 10 x 15 storage unit!  Well with overflow in our son’s garage and basement.  We lived in his basement for a month, which was nice as we were able to spend Christmas and New Years with them, get to know the baby or have her get to know us.  LOL

On December 31st we signed a lease for a 2 bdrm, 1 bath duplex (we’re on the main level and have neighbors upstairs.)  However, we didn’t move our stuff in until the 2nd, again thanks to our son and his friends!!

We’ve actually only lived here since the 7th as we’ve been sick for a month and no energy to do this.  We learned from our new doctor here that the first month in a new area, your body has no immunity.  Well, it’s a double whammy as I don’t have an immunity system at all.  We’ve managed to catch this every lingering upper respiratory mess.  One or two days you start feeling better and then it’s back to feeling crappy for another one or two days.  And that’s on antibiotics.  I’m hoping we’ll be done with this soon!!  I’d say we both are about 75% better and just started the second round of antibiotics … yeehaw!  I’ll be so very happy when this coughing stops along with the blowing of my nose!!

We still are car-less, so we borrow our son’s vehicle when we need to go out.  Wow, that’s come full circle … having to ask to borrow the car!

It has been very cold, however, this week it’s been real nice.  I’m able to go out in a sweatshirt and sweatpants.  I still wear my warm fuzzy boots, keep my feeties warm!

All in all, we are doing good.  Trying to get into a routine, but not compromise the body’s immune system.  Such a fine line I have to walk.  I need to listen to my body more and not want to go and see the grandbabies in their activities.  This Sunday was a good example of that, I had insomnia Saturday night and my body was telling me to stay home and not go out.  So I missed the band concert and the b-ball game.  My son did take me to the pharmacy to get the next round of the drugs.  So instead we stayed home and are tying to put the front room together.  It’s coming along, I still have a few things to do, but it may have to wait until tomorrow, we’ll see.

Hope you all are having a great Monday!!  I’m going to see what I can or cannot do … lol … dang body!!!

I know, it’s been a long time

The months have flown by and we are now in November.  I have about 1/3 of the house packed and we load the truck on December 6th.  God help me, please!!

As you can tell we are still moving to the Midwest.  This is similar but different from the last times we’ve moved.  Why?  I’m so glad you asked, because I would be in the same amount of completed packing, because I was working full time.  Now it’s due to my body not cooperating with me from Scleroderma.  However, thankfully I march on with help from family and friends!!

This morning while going through my emails I came across an article about Chronic Illnesses.  The article was written by a fellow sufferer of these illnesses.  Mind you, she has Lupus, Sjogrens, & Rheumatoid Arthritis, however, they are all in the same family as my Systemic Sclerosis (Scleroderma).  All of these diseases are debilitating, painful as well as frustrating when one has been an active person.   If you have time, it’s a great read.  You can read it here.

Every point she made is so true.  I was glad to know I’m not the only one feeling this way.  HOWEVER, I must say that I have the BEST set of friends and family.  They don’t judge me for what I can or cannot do.  They are very willing to help me with whatever I need, if I only ask them.

She talks about having to grieve daily over the new daily things she cannot do.  Oh. My. Gosh.  She is so right!!   I know to those that are well, this makes no sense.  But to those of us that suffer, everyday there is a new degree of things that can’t be done.  As I type this, I can see my fingers curving more and more.  I’m not able to spread my hands.  Here’s a test, take a ruler, open your hand and spread out your fingers.  Measure from your thumb to your little finger and note the measurement.  I just did this and I measure 5 1/2 inches.  Weird!!

When my husband holds my hand, if we interlock fingers, his fingers only go to my middle knuckles because the rest are stiff.  Another thing to grieve, not being able to interlock fingers with my hubby.  It’s a sad and scary thing to realize what normal function is gradually slipping away.

She talks about the pain.  Oh yes, the pain.  You know the pain can be a real pain in the a** and it is EXACTLY as she mentions in this article.  What I find frustrating is the FDA in all their infinite wisdom, changed the medication I’m on and limited the amount of pills given at a time.  Not only did they do that, they DO NOT allow refills.  So that means, I have to go to my doctors office each time to get a new script and take it to the pharmacy to be filled.  The ONLY people this hinders are those that have a legitimate reason to be on these medications.  Those that use them to get high, will be able to obtain them some other way.  Can you tell I’m just a tad frustrated?  Oh well, Let It Be as The Beatles sing  OR Let It Go as in Frozen.    Or as her article reads, “Not giving up, but giving up.”  Some would think that is strange, but it really isn’t.  Giving up trying to figure out the whys, what-for, the infinite wisdom of those in charge … etc.  It does make for a better blood pressure reading.

When hubby goes off on something, I just look at him and tell him, I can’t change it.  OR, I don’t have the brain space to deal with that right now.  Which is true!  I now get overwhelmed.  This person who used to be an Escrow Officer handling thousands and millions of dollars now gets overwhelmed and has to stop, breathe and focus my brain and write down what I need to accomplish for that day.  AND not be disappointed that I didn’t get everything on my list checked off.  I spend a lot of time shaking my head at myself.

Her 3 things are very helpful.  I also a fourth thing, which should be my first thing, that is my faith and trust in God.  My fifth thing, which should be my second thing, is my counselor.  Without her, I would not have made it through this year and preparing for this move.

 

 

R.I.P. Lauren Bacall

Another one gone.  She’s lived a long life and such a statuesque lady.  We love watching her movies!  R.I.P. Mz. Bacall.   Bogie and Bacall now together again

I went to Van Gogh and Vino with my friends.  It was so much fun, especially since I have never painted before.  You can check out their website here.  If you have one or something like it near you – GO!!

The night before last, I couldn’t sleep.  I think I had about an hour of sleep that night.  As I lay awake at 3am, I finally took a sleeping pill.  I try not to take one too often as I don’t want my body to get used to it.  Anyway, at 5am, I took a night night pill.  I didn’t wake up until 2pm.  YAY, Praise the Lord I had sleep!!  Last night I slept about 6 hours.  without a pill.  I’ll take it!!  I’ve been up since 5:45am, but that’s okay.  It gave me time to have coffee with my Lord God and work on my devotionals.  It was nice and quiet.   I had quite a bit to journal about, unbeknownst to me!

Not much else going on.  Getting ready to start the ribs for our gathering at a friends house.  It’s so fun to be able to gather.  I hope her hubby isn’t too tired as he gets home today.

Y’all have a great wonder-filled week!!