January 15, 2016

I’ve recently said to a friend that I accept and love her for who she is, the good, the bad & the ugly.  This got me to thinking, that she is more family to  me than a friend.  Which then got me thinking, what are the definitions of each?

Well, according to Merriam-Webster, these are the definitions:

Family:  A group of people who are related to each other

Friend:  One attached to each other by affection or esteem

I got to thinking, isn’t that supposed to be what is a family, attached to each other by affection or esteem?  I thought Merriam-Webster had them switched.  However, reading and hearing the news, people are demonstrating that they are just a group of people who are related to each other.  They lack the affection and esteem toward one another.  That thought made me sad.  My parents taught us that we are family through thick  and thin and that we are to love and respect each of our siblings as sometimes they may be all you have.

As I described my friend above, the actual definition of friend applies.  I think there should be a word in between that describes a friend that is more like family … Framily?  Famiend?  Familfriend?   LOL … I don’t know, but a combination of both.  I suppose Friend will do for now, if I go with the Merriam-Webster definition.  But she is family, as the saying goes, a sister from another mister!!

I am blessed to have family that are friends as well as friends who are family.  I wouldn’t have it any other way.  I just hope I can pass that on to my next generation.


January 12, 2016

Last night hubby was going through boxes and found my school transcripts.  It showed I went to Kindergarten at a public school.  I remember going to a Parochial school for six years, but had no recollection of going to Kindergarten at this one school.  I kept thinking and thinking and yeah, nothing was coming to my brain.

I sent a message to my oldest friend, one that’s known me forever and asked her.  She gave me names of the two teachers at that time.  They both sounded familiar, so I wasn’t sure.  The teacher she had, she described her room and what she looked like and even where her room was at the school.  LOL, I don’t even remember going to that school.  It was amazing that she had these vivid memories and I had nothing.

As I thought about it, I remember bits and pieces, but nothing that is enough to make any sense.  For the six years at the Parochial school, I remember the playground, where & which classrooms were which, the principal, the teachers, but I could not describe each room or some of the teachers.  For my first three grades, it was easy as they were nuns and wore the same habit.  But the civilian teachers … nope.  I do know I had one teacher for 4th & 6th grade.  After that I went to a public junior high.  Now I do have memories of those year … well, more than my elementary years.

Why is it some people of great memories from childhood?  My hubby is the same way.  He’s moved all over the country being an Air Force brat, but he remembers years, places, details, etc.  It just amazes me.

I told my friend that she needed to write down our memories as mine are spotty!!  Thank God for friends who can piece together my past!!!  I know I’ll get the full flash of my life at judgement time, but I want to know now, not when I’m answering for them.  LOL

How far back do you remember?  And are these memories in full detail??

January 7, 2016

I spoke to my bestest friend last night on video chat.  It had been over a year since I’ve actually talked to her.  We usual message back and forth every day or every other day, but this was the first time to actually see her and talk.  It was so great as I miss her so much!  I love that we can laugh and carry on as if we were actually together.

We watched our grandbaby last night.  She is speaking so clear now and knows what she wants or not wants.  We watched her favorite movie, “The Little Mermaid”and she’ll sing and dance with the music.  We get to have her again tonight for a couple of hours.  YAY!

The weather is supposed to be snowing, but right now it’s raining.  The snow will appear later today or night.  One never knows in the midwest, storms appear or disappear out of the blue.

Just thought I’d stop in and say, “Hey!”  Not much else going on, but I do need to go to the basement to get the laundry going.  As I’ve taken a pain med & muscle relaxer, I had best wait until the effects are not so strong.  LOL, life with Scleroderma.  Gotta love it … NOT!!

I hope you all have a wonderful day, where ever you are!!!


Bad Day

This morning is the beginning of a bad day.  Last night my arms hurt so bad and nothing was helping.  Hubby kept rubbing my arms as well as me taking a pain med and muscle relaxer.  Nothing was working, so I asked for prayer, which helped ease the pain to allow me to sleep.

This morning, I started out with a pain med.   Besides my arms, my  stomach and the tops of my legs are aching.  On days like this I want to just lay down and moan.  I know I should just get up and move, but with all these parts aching, I decided to try and blog.  It will be a short blog, but I’m at least getting my fingers moving and taking my brain off the pain.

I haven’t had many bad pain days lately, so this is hitting me pretty hard.

We had friends visit around the 22nd of July.  It was great fun as we visited as well as toured some of the attractions here in our town.  It was sad to see them go, but I was thankful we were able to see them!

This month my sister is flying to KC for a week.  Sometime during that week, she and my other sister are driving up to visit.  Not sure which day that will be, but I’m looking forward to it.

In September, my middle daughter is flying out for a visit.  it will be nice to see her also!!

Well, that’s about all I can update as my brain isn’t getting as distracted as I hoped.  Y’all have a good one!!

Sorry I’ve been so lax on the postings.  I haven’t had any motivation to write … anything.  But a friend, S4L, reminded me today that I should write again and that if I wait for motivation, I won’t write again.  You know what, she’s right, so here I write … lol

Life in the flat lands has been fine.  It’s starting to warm up and feeling springy.  It wasn’t much of a winter, which I’m thankful for, however, it doesn’t help with the dry conditions.  There have already been several wild fires, which is strange.  When we lived here before, it was so moist out, there were no wild fires.  Weird to come back to a dry Midwest.  It will be interesting to see what the summer will be like, however, I can wait to see that and just enjoy the temps that are now.

On St. Patrick’s day, we picked up our grandkids from school in our green van.  My hubby had a tee shirt with a green plaid vest & bow tie screen printed on it, in addition to wearing a green bow tie.  I had on a green sweatshirt with green shamrock clips in my hair and green beads.  Our grandson made it to the van first and said, “Whoa, that’s a lot of green you’re wearing!”  As our granddaughter was tied up and taking longer, hubby got out of the van to wait for her.  The car behind us saw him and started laughing at the getup.  She finally arrived and tried not to react.  Darn, she’s getting to that age where she tries to not react to the crazy things we do.  I guess we’ll have to try harder!!

My oldest sister has me hooked on National Geographic’s Live Wild Safari, which is online twice a day, morning and night drive.  You can only watch it online through the live feed.  As I won’t ever physically be able to go to So. Africa to go on safari, it is so much fun to watch, when I can and when there is no problem with the feed, the wild animals they come in contact with.

There have been several leopards they follow.  They are such beautiful kitties!  One has quite the personality, while the other that is the same age, just ignores the vehicle & camera.  They walk right next to the vehicle and just look at the guide.  The one with the personality actually charged the vehicle and stopped close, just because he could.  It even looked like he was chuckling after he did it.

Today they went to the hyena den and found the mom and three cubs.  It was late afternoon there and starting to get dark.  The mom was getting ready to hunt, leaving the cubs at the den.  The guide said they were going to leave the cubs as they didn’t want to call any predators attention to the cubs while mom was gone.  They were so cute.  Before mom left, one of the babies walked right up to the vehicle and looked at the camera.

One never knows what will happen on each drive.  If interested, the live feed is from 10am – 1pm Eastern time and 12am – 3am Eastern time, everyday.    It is quite fun as you can interact with the driver/guide through twitter or email.  Click here if you’d like to check it out.  During off hours, they run a loop of what is seen on that day’s drive.

Watching these animals and how they survive as part of the food chain, I’m reminded of a passage I read this morning:  Matthew 6:25-34 – Do not worry.

25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Can any one of you by worrying add a single hour to your life?

28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

We humans are much more valuable to God than any bird or animal.  If we truly follow Christ and have Jesus in our hearts, there is no reason to worry about anything as He provides.  The question is, can you surrender and wait in faith for His provision?

Happy New Year, 19 Days Late

Wow, was November really my last post?  Well, the old house got packed, the truck got loaded, thanks to many amazing friends and we drove half way across the country thanks to our son!!  Also Thanks to our oldest daughter for letting us crash at her house along the way!

We found ourselves in Nebraska, Homeless, Car-less and Jobless.  It’s a weird feeling when everything you own is in a 10 x 15 storage unit!  Well with overflow in our son’s garage and basement.  We lived in his basement for a month, which was nice as we were able to spend Christmas and New Years with them, get to know the baby or have her get to know us.  LOL

On December 31st we signed a lease for a 2 bdrm, 1 bath duplex (we’re on the main level and have neighbors upstairs.)  However, we didn’t move our stuff in until the 2nd, again thanks to our son and his friends!!

We’ve actually only lived here since the 7th as we’ve been sick for a month and no energy to do this.  We learned from our new doctor here that the first month in a new area, your body has no immunity.  Well, it’s a double whammy as I don’t have an immunity system at all.  We’ve managed to catch this every lingering upper respiratory mess.  One or two days you start feeling better and then it’s back to feeling crappy for another one or two days.  And that’s on antibiotics.  I’m hoping we’ll be done with this soon!!  I’d say we both are about 75% better and just started the second round of antibiotics … yeehaw!  I’ll be so very happy when this coughing stops along with the blowing of my nose!!

We still are car-less, so we borrow our son’s vehicle when we need to go out.  Wow, that’s come full circle … having to ask to borrow the car!

It has been very cold, however, this week it’s been real nice.  I’m able to go out in a sweatshirt and sweatpants.  I still wear my warm fuzzy boots, keep my feeties warm!

All in all, we are doing good.  Trying to get into a routine, but not compromise the body’s immune system.  Such a fine line I have to walk.  I need to listen to my body more and not want to go and see the grandbabies in their activities.  This Sunday was a good example of that, I had insomnia Saturday night and my body was telling me to stay home and not go out.  So I missed the band concert and the b-ball game.  My son did take me to the pharmacy to get the next round of the drugs.  So instead we stayed home and are tying to put the front room together.  It’s coming along, I still have a few things to do, but it may have to wait until tomorrow, we’ll see.

Hope you all are having a great Monday!!  I’m going to see what I can or cannot do … lol … dang body!!!

I know, it’s been a long time

The months have flown by and we are now in November.  I have about 1/3 of the house packed and we load the truck on December 6th.  God help me, please!!

As you can tell we are still moving to the Midwest.  This is similar but different from the last times we’ve moved.  Why?  I’m so glad you asked, because I would be in the same amount of completed packing, because I was working full time.  Now it’s due to my body not cooperating with me from Scleroderma.  However, thankfully I march on with help from family and friends!!

This morning while going through my emails I came across an article about Chronic Illnesses.  The article was written by a fellow sufferer of these illnesses.  Mind you, she has Lupus, Sjogrens, & Rheumatoid Arthritis, however, they are all in the same family as my Systemic Sclerosis (Scleroderma).  All of these diseases are debilitating, painful as well as frustrating when one has been an active person.   If you have time, it’s a great read.  You can read it here.

Every point she made is so true.  I was glad to know I’m not the only one feeling this way.  HOWEVER, I must say that I have the BEST set of friends and family.  They don’t judge me for what I can or cannot do.  They are very willing to help me with whatever I need, if I only ask them.

She talks about having to grieve daily over the new daily things she cannot do.  Oh. My. Gosh.  She is so right!!   I know to those that are well, this makes no sense.  But to those of us that suffer, everyday there is a new degree of things that can’t be done.  As I type this, I can see my fingers curving more and more.  I’m not able to spread my hands.  Here’s a test, take a ruler, open your hand and spread out your fingers.  Measure from your thumb to your little finger and note the measurement.  I just did this and I measure 5 1/2 inches.  Weird!!

When my husband holds my hand, if we interlock fingers, his fingers only go to my middle knuckles because the rest are stiff.  Another thing to grieve, not being able to interlock fingers with my hubby.  It’s a sad and scary thing to realize what normal function is gradually slipping away.

She talks about the pain.  Oh yes, the pain.  You know the pain can be a real pain in the a** and it is EXACTLY as she mentions in this article.  What I find frustrating is the FDA in all their infinite wisdom, changed the medication I’m on and limited the amount of pills given at a time.  Not only did they do that, they DO NOT allow refills.  So that means, I have to go to my doctors office each time to get a new script and take it to the pharmacy to be filled.  The ONLY people this hinders are those that have a legitimate reason to be on these medications.  Those that use them to get high, will be able to obtain them some other way.  Can you tell I’m just a tad frustrated?  Oh well, Let It Be as The Beatles sing  OR Let It Go as in Frozen.    Or as her article reads, “Not giving up, but giving up.”  Some would think that is strange, but it really isn’t.  Giving up trying to figure out the whys, what-for, the infinite wisdom of those in charge … etc.  It does make for a better blood pressure reading.

When hubby goes off on something, I just look at him and tell him, I can’t change it.  OR, I don’t have the brain space to deal with that right now.  Which is true!  I now get overwhelmed.  This person who used to be an Escrow Officer handling thousands and millions of dollars now gets overwhelmed and has to stop, breathe and focus my brain and write down what I need to accomplish for that day.  AND not be disappointed that I didn’t get everything on my list checked off.  I spend a lot of time shaking my head at myself.

Her 3 things are very helpful.  I also a fourth thing, which should be my first thing, that is my faith and trust in God.  My fifth thing, which should be my second thing, is my counselor.  Without her, I would not have made it through this year and preparing for this move.