Bad Day

This morning is the beginning of a bad day.  Last night my arms hurt so bad and nothing was helping.  Hubby kept rubbing my arms as well as me taking a pain med and muscle relaxer.  Nothing was working, so I asked for prayer, which helped ease the pain to allow me to sleep.

This morning, I started out with a pain med.   Besides my arms, my  stomach and the tops of my legs are aching.  On days like this I want to just lay down and moan.  I know I should just get up and move, but with all these parts aching, I decided to try and blog.  It will be a short blog, but I’m at least getting my fingers moving and taking my brain off the pain.

I haven’t had many bad pain days lately, so this is hitting me pretty hard.

We had friends visit around the 22nd of July.  It was great fun as we visited as well as toured some of the attractions here in our town.  It was sad to see them go, but I was thankful we were able to see them!

This month my sister is flying to KC for a week.  Sometime during that week, she and my other sister are driving up to visit.  Not sure which day that will be, but I’m looking forward to it.

In September, my middle daughter is flying out for a visit.  it will be nice to see her also!!

Well, that’s about all I can update as my brain isn’t getting as distracted as I hoped.  Y’all have a good one!!

Sorry I’ve been so lax on the postings.  I haven’t had any motivation to write … anything.  But a friend, S4L, reminded me today that I should write again and that if I wait for motivation, I won’t write again.  You know what, she’s right, so here I write … lol

Life in the flat lands has been fine.  It’s starting to warm up and feeling springy.  It wasn’t much of a winter, which I’m thankful for, however, it doesn’t help with the dry conditions.  There have already been several wild fires, which is strange.  When we lived here before, it was so moist out, there were no wild fires.  Weird to come back to a dry Midwest.  It will be interesting to see what the summer will be like, however, I can wait to see that and just enjoy the temps that are now.

On St. Patrick’s day, we picked up our grandkids from school in our green van.  My hubby had a tee shirt with a green plaid vest & bow tie screen printed on it, in addition to wearing a green bow tie.  I had on a green sweatshirt with green shamrock clips in my hair and green beads.  Our grandson made it to the van first and said, “Whoa, that’s a lot of green you’re wearing!”  As our granddaughter was tied up and taking longer, hubby got out of the van to wait for her.  The car behind us saw him and started laughing at the getup.  She finally arrived and tried not to react.  Darn, she’s getting to that age where she tries to not react to the crazy things we do.  I guess we’ll have to try harder!!

My oldest sister has me hooked on National Geographic’s Live Wild Safari, which is online twice a day, morning and night drive.  You can only watch it online through the live feed.  As I won’t ever physically be able to go to So. Africa to go on safari, it is so much fun to watch, when I can and when there is no problem with the feed, the wild animals they come in contact with.

There have been several leopards they follow.  They are such beautiful kitties!  One has quite the personality, while the other that is the same age, just ignores the vehicle & camera.  They walk right next to the vehicle and just look at the guide.  The one with the personality actually charged the vehicle and stopped close, just because he could.  It even looked like he was chuckling after he did it.

Today they went to the hyena den and found the mom and three cubs.  It was late afternoon there and starting to get dark.  The mom was getting ready to hunt, leaving the cubs at the den.  The guide said they were going to leave the cubs as they didn’t want to call any predators attention to the cubs while mom was gone.  They were so cute.  Before mom left, one of the babies walked right up to the vehicle and looked at the camera.

One never knows what will happen on each drive.  If interested, the live feed is from 10am – 1pm Eastern time and 12am – 3am Eastern time, everyday.    It is quite fun as you can interact with the driver/guide through twitter or email.  Click here if you’d like to check it out.  During off hours, they run a loop of what is seen on that day’s drive.

Watching these animals and how they survive as part of the food chain, I’m reminded of a passage I read this morning:  Matthew 6:25-34 – Do not worry.

25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Can any one of you by worrying add a single hour to your life?

28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

We humans are much more valuable to God than any bird or animal.  If we truly follow Christ and have Jesus in our hearts, there is no reason to worry about anything as He provides.  The question is, can you surrender and wait in faith for His provision?

Happy New Year, 19 Days Late

Wow, was November really my last post?  Well, the old house got packed, the truck got loaded, thanks to many amazing friends and we drove half way across the country thanks to our son!!  Also Thanks to our oldest daughter for letting us crash at her house along the way!

We found ourselves in Nebraska, Homeless, Car-less and Jobless.  It’s a weird feeling when everything you own is in a 10 x 15 storage unit!  Well with overflow in our son’s garage and basement.  We lived in his basement for a month, which was nice as we were able to spend Christmas and New Years with them, get to know the baby or have her get to know us.  LOL

On December 31st we signed a lease for a 2 bdrm, 1 bath duplex (we’re on the main level and have neighbors upstairs.)  However, we didn’t move our stuff in until the 2nd, again thanks to our son and his friends!!

We’ve actually only lived here since the 7th as we’ve been sick for a month and no energy to do this.  We learned from our new doctor here that the first month in a new area, your body has no immunity.  Well, it’s a double whammy as I don’t have an immunity system at all.  We’ve managed to catch this every lingering upper respiratory mess.  One or two days you start feeling better and then it’s back to feeling crappy for another one or two days.  And that’s on antibiotics.  I’m hoping we’ll be done with this soon!!  I’d say we both are about 75% better and just started the second round of antibiotics … yeehaw!  I’ll be so very happy when this coughing stops along with the blowing of my nose!!

We still are car-less, so we borrow our son’s vehicle when we need to go out.  Wow, that’s come full circle … having to ask to borrow the car!

It has been very cold, however, this week it’s been real nice.  I’m able to go out in a sweatshirt and sweatpants.  I still wear my warm fuzzy boots, keep my feeties warm!

All in all, we are doing good.  Trying to get into a routine, but not compromise the body’s immune system.  Such a fine line I have to walk.  I need to listen to my body more and not want to go and see the grandbabies in their activities.  This Sunday was a good example of that, I had insomnia Saturday night and my body was telling me to stay home and not go out.  So I missed the band concert and the b-ball game.  My son did take me to the pharmacy to get the next round of the drugs.  So instead we stayed home and are tying to put the front room together.  It’s coming along, I still have a few things to do, but it may have to wait until tomorrow, we’ll see.

Hope you all are having a great Monday!!  I’m going to see what I can or cannot do … lol … dang body!!!

I know, it’s been a long time

The months have flown by and we are now in November.  I have about 1/3 of the house packed and we load the truck on December 6th.  God help me, please!!

As you can tell we are still moving to the Midwest.  This is similar but different from the last times we’ve moved.  Why?  I’m so glad you asked, because I would be in the same amount of completed packing, because I was working full time.  Now it’s due to my body not cooperating with me from Scleroderma.  However, thankfully I march on with help from family and friends!!

This morning while going through my emails I came across an article about Chronic Illnesses.  The article was written by a fellow sufferer of these illnesses.  Mind you, she has Lupus, Sjogrens, & Rheumatoid Arthritis, however, they are all in the same family as my Systemic Sclerosis (Scleroderma).  All of these diseases are debilitating, painful as well as frustrating when one has been an active person.   If you have time, it’s a great read.  You can read it here.

Every point she made is so true.  I was glad to know I’m not the only one feeling this way.  HOWEVER, I must say that I have the BEST set of friends and family.  They don’t judge me for what I can or cannot do.  They are very willing to help me with whatever I need, if I only ask them.

She talks about having to grieve daily over the new daily things she cannot do.  Oh. My. Gosh.  She is so right!!   I know to those that are well, this makes no sense.  But to those of us that suffer, everyday there is a new degree of things that can’t be done.  As I type this, I can see my fingers curving more and more.  I’m not able to spread my hands.  Here’s a test, take a ruler, open your hand and spread out your fingers.  Measure from your thumb to your little finger and note the measurement.  I just did this and I measure 5 1/2 inches.  Weird!!

When my husband holds my hand, if we interlock fingers, his fingers only go to my middle knuckles because the rest are stiff.  Another thing to grieve, not being able to interlock fingers with my hubby.  It’s a sad and scary thing to realize what normal function is gradually slipping away.

She talks about the pain.  Oh yes, the pain.  You know the pain can be a real pain in the a** and it is EXACTLY as she mentions in this article.  What I find frustrating is the FDA in all their infinite wisdom, changed the medication I’m on and limited the amount of pills given at a time.  Not only did they do that, they DO NOT allow refills.  So that means, I have to go to my doctors office each time to get a new script and take it to the pharmacy to be filled.  The ONLY people this hinders are those that have a legitimate reason to be on these medications.  Those that use them to get high, will be able to obtain them some other way.  Can you tell I’m just a tad frustrated?  Oh well, Let It Be as The Beatles sing  OR Let It Go as in Frozen.    Or as her article reads, “Not giving up, but giving up.”  Some would think that is strange, but it really isn’t.  Giving up trying to figure out the whys, what-for, the infinite wisdom of those in charge … etc.  It does make for a better blood pressure reading.

When hubby goes off on something, I just look at him and tell him, I can’t change it.  OR, I don’t have the brain space to deal with that right now.  Which is true!  I now get overwhelmed.  This person who used to be an Escrow Officer handling thousands and millions of dollars now gets overwhelmed and has to stop, breathe and focus my brain and write down what I need to accomplish for that day.  AND not be disappointed that I didn’t get everything on my list checked off.  I spend a lot of time shaking my head at myself.

Her 3 things are very helpful.  I also a fourth thing, which should be my first thing, that is my faith and trust in God.  My fifth thing, which should be my second thing, is my counselor.  Without her, I would not have made it through this year and preparing for this move.



R.I.P. Lauren Bacall

Another one gone.  She’s lived a long life and such a statuesque lady.  We love watching her movies!  R.I.P. Mz. Bacall.   Bogie and Bacall now together again

I went to Van Gogh and Vino with my friends.  It was so much fun, especially since I have never painted before.  You can check out their website here.  If you have one or something like it near you – GO!!

The night before last, I couldn’t sleep.  I think I had about an hour of sleep that night.  As I lay awake at 3am, I finally took a sleeping pill.  I try not to take one too often as I don’t want my body to get used to it.  Anyway, at 5am, I took a night night pill.  I didn’t wake up until 2pm.  YAY, Praise the Lord I had sleep!!  Last night I slept about 6 hours.  without a pill.  I’ll take it!!  I’ve been up since 5:45am, but that’s okay.  It gave me time to have coffee with my Lord God and work on my devotionals.  It was nice and quiet.   I had quite a bit to journal about, unbeknownst to me!

Not much else going on.  Getting ready to start the ribs for our gathering at a friends house.  It’s so fun to be able to gather.  I hope her hubby isn’t too tired as he gets home today.

Y’all have a great wonder-filled week!!


Dog Days of Summer

It’s been pretty hot around here.  Thankful that it cools down when the sun goes down.  I’ve been busy dog sitting.  I had a puppy for a few days.  It reminded me that I don’t want a puppy … EVER!!!  LOL  Oh.  My.  Word.  “No Bite” was my vocabulary for all 3 days.

Then I had a Westi/mini poodle mix.  We fell in love with this little guy.  He was the perfect size and liked to cuddle.  Now I have a Blonde Cocker Spaniel.  As it’s hot outside and we have no a/c – I called his mom to get the name of their groomer.  He’s getting groomed tomorrow.  I hope that helps with his panting in the house.  I feel so bad for him.  He’s also been a joy.

A friend and I went to the park to visit.  On the way back, there’s a cherry tree, with a note that says, for 20 minutes,  pick all you can.  So we were picking cherries and piling them in our shirts.  It was fun and good exercise for my hands.

Can you believe it is already July?  I have to start packing now so I’m ready in 6 months!!

Our neighbors had a yard sale and hubby got me a Schwinn 5 speed cruiser bike for $10.  We just need to get a tube for the front tire and change a couple of cables and I’ll have wheels!!!  LOL   Now to see if I have balance!!  I’m excited and can’t wait to use it.   Hubby was happy as he was able to get a new full set of camping plates/kettle/etc.  along with table top propane heater and a propane lantern.  Big score at this yard sale!!

Since I haven’t been working, my nails have grown long, to the point that I cannot type.  LOL … I guess I had better think about filing them down.

Well, just thought I’d stop in and say hey!  I’m still here and doing good, considering!  Y’all have a safe and Happy Independence Day!!!

Almost Christmas

Christmas is so close.  I know the next couple of days will fly by as we have 5 Christmas Eve services between Monday and Tuesday evening.  Thankfully, we are closed on Christmas AND there are no services next weekend for Volunteer Appreciation Weekend.  It takes many volunteers to put on a service, not to mention an additional 5 Christmas Eve Services.  I’m not sure hubby will know what to do with a weekend off.

I wasn’t going to put up our little tree.  When I walked into the house Friday night, hubby had our little 2 foot tree up.

2013 tree.

He did a great  job.  I guess you can tell what movie I’m watching on the tele – “A Knights Tale”   HAH!

Yesterday, I went with a couple of friends to S4L’s house.  She had a class on Essential Oils.  I’ve  learned quite a bit and look forward to learning more!  Scleroderma has made a mess of my skin (among other things).  After 3 different oils rubbed into my hands and 2 different ones in my water, this morning my skin felt calmer and some of the weird scaly spots are not as bad.  The interesting thing the instructor had mentioned is that most auto-immune diseases are caused by an over abundance of Candida in the body.  What she said made sense and it would definitely be worth checking this out.  As I’m still within the 1st year of this disease, what if this cures it?   I’m all for that!!  I must say that I was exhausted when I got home.  Not sure if it was drinking information from a fire hose or the oils working in my body.  Today, I’m vertical, which is a great thing!

The new medication I started on Friday, can cause facial muscle twitches, seizures and more lovely neurological side effects that I’m not too thrilled about.   Plus another future medication is a mild form of chemo.    I’ll let y’all know the progress as I venture on this new path of Essential Oils

Later today we are going to S4L’s house for a gathering.  It will be fun, as this will be the last time I get to see her and her family before they leave to visit her family in Seattle.  It’s a potluck so I’m going to make Mac & Cheese.  LOL, hopefully it will turn out as I haven’t made it in quite some time.

I wish you all a Merry Christmas!!  Have a great time with you family and friends and hopeful in the perfect gift that was given to us over 2000 years ago!!

Love you all!