The First Day of February

Disclaimer – I’m not responsible for any typos or non complete sentences as I’m blogging under the influence.  

The progression of my disease keeps  me in pain.  I’ve had to back out of a couple of meetings due to my body not cooperating with the morning.  I miss Toastmasters and Women of Grace, because I’m doing good just getting to work before the doors open.

I’m now walking with a cane.  I don’t know why I hadn’t done this before as it takes the weight off my knee, so hopefully it won’t be as painful AND I need to stop being stubborn and just use the darn thing!  The cool thing about this cane – it was my brother’s.  Hubby cut it down for me.  I’m still getting used to being in sync with walking and steps, but I’m getting there.  I still cannot go up a flight of stairs.

In March we are traveling to Nebraska to meet our new granddaughter.  Then after that we will be going to Vegas to visit family.  I’ve been debating on taking advantage of the wheelchair offered at the airport.  I probably should use the wheelchair that way I won’t end up over exerting myself and be down for a day or two of my 1 week vacation at each destination.

I left work early yesterday as my knees decided to rebel and the pain was affecting my thoughts.  I couldn’t stay focused with the throbbing.  Hubby picked me up and brought me home.  He surprised me with the cane, as it had been a couple of weeks that he said he was going to cut it down.

I think my knees finally had enough as it had been an active week at work.  The constant walking/moving/up and down out of the chair was enough that they finally decided to quit working.  My right knee wouldn’t bend without shooting pains.  I get aggravated but there isn’t much I can do.  Well, I could start taking a mild form a chemo drug (in addition to the other ones) to see if it will work on the pain, but I’m still being resistant to this option.

I have applied for a handicap placard so we can park closer wherever we go.  I’m hoping to have it before we leave for Nebraska at the end of this month.

I’m excited to travel and see my kids/grandkids but apprehensive as I’m not as mobile as I was the last time I saw them.  Heck I’m not as mobile as I was last March.  Strange how fast this disease is progressing and affecting me.  I’m thankful hubby is going with us as I know I would not be able to travel without him.  I know he gets frustrated being my caretaker, but he really is there for me.

We’ve talked to my doctor about disability.  As it takes so long I guess I really should look into it.  If I continue to progress as fast as I have these last 7 months, what will the next 7 months look like?

The 30th was one of our pastor’s birthdays.  Actually the one I have a good working relationship with.  I made him the Better Than Sex Cake (that’s what it’s called) or as my brother-in-law calls it, “The Chocolate Death Cake”!  LOL, I was glad to hear he really liked it.

Sunday is the Super Bowl.  Which team are you rooting  for?  As my Steelers and  hubby’s Vikings are not there, I don’t have  a  preference.  I saw a preview of the puppy and the horse commercial (of course it was Budwiser) so I may be watching for the commercials AND to see Bruno Mars.  Other than that, I don’t have much interested in the game.  Personally, I think the Broncos will dominate the game.  But kudos to both teams for getting to the Super Bowl!!  How cool is that!?!?!

I’m going back to bed to get these legs up!  As I spend so much time in bed, I may need to get a new mattress or switch the one from the spare room to our room.  I’d really like to get a memory foam mattress and I keep eyeing the ones on … but that will be in time.

Well, y’all have a great weekend.  Talk at you later.

Almost Christmas

Christmas is so close.  I know the next couple of days will fly by as we have 5 Christmas Eve services between Monday and Tuesday evening.  Thankfully, we are closed on Christmas AND there are no services next weekend for Volunteer Appreciation Weekend.  It takes many volunteers to put on a service, not to mention an additional 5 Christmas Eve Services.  I’m not sure hubby will know what to do with a weekend off.

I wasn’t going to put up our little tree.  When I walked into the house Friday night, hubby had our little 2 foot tree up.

2013 tree.

He did a great  job.  I guess you can tell what movie I’m watching on the tele – “A Knights Tale”   HAH!

Yesterday, I went with a couple of friends to S4L’s house.  She had a class on Essential Oils.  I’ve  learned quite a bit and look forward to learning more!  Scleroderma has made a mess of my skin (among other things).  After 3 different oils rubbed into my hands and 2 different ones in my water, this morning my skin felt calmer and some of the weird scaly spots are not as bad.  The interesting thing the instructor had mentioned is that most auto-immune diseases are caused by an over abundance of Candida in the body.  What she said made sense and it would definitely be worth checking this out.  As I’m still within the 1st year of this disease, what if this cures it?   I’m all for that!!  I must say that I was exhausted when I got home.  Not sure if it was drinking information from a fire hose or the oils working in my body.  Today, I’m vertical, which is a great thing!

The new medication I started on Friday, can cause facial muscle twitches, seizures and more lovely neurological side effects that I’m not too thrilled about.   Plus another future medication is a mild form of chemo.    I’ll let y’all know the progress as I venture on this new path of Essential Oils

Later today we are going to S4L’s house for a gathering.  It will be fun, as this will be the last time I get to see her and her family before they leave to visit her family in Seattle.  It’s a potluck so I’m going to make Mac & Cheese.  LOL, hopefully it will turn out as I haven’t made it in quite some time.

I wish you all a Merry Christmas!!  Have a great time with you family and friends and hopeful in the perfect gift that was given to us over 2000 years ago!!

Love you all!


Another Month Gone

It has been a wild month.  Between being sick on and off, mostly on, and the events going on at church, I’ve had enough energy to get through work and go home to bed.

Our church hosted a Comedy Night with Nazareth.  He’s pretty funny!  Then he did the weekend teaching at church.  The following weekend was the Love & Respect Conference and over 100 people went through this conference.  It was great to hear how many couples reconnected in their relationships.  This weekend is the church’s 15th birthday.  Amazing – donuts and T-shirts is in store for this weekend.  After that, next Friday is our Thanks to You Volunteer Appreciation.  We are celebrating what God has done in our church through our volunteers.  I’m tired just typing this, hah!  We have a break and then the Easter Preparations begin.  Yup, we are rockin’ and rollin’ and lovin’ every minute, even though it’s exhausting!

For Valentines Day, hubby went out at bought me the last ticket for this concert.  I am so excited to go on a girl’s night out with a bunch of incredible ladies.  Thanks S4L for letting me know about this.  I know the flyer says it’s in California, however, the tour will be in Reno on Saturday 2/16/13 night.  I am so excited to just have a night off and doing something other than thinking about how behind I am at work!!

Mind you, hubby going out to purchase this ticket was no easy feat as he is still sick.  He’s now on his 4th round, 3rd different, antibiotics as his  lungs keep having bronchial spasms when he gets in the cold air and can’t breathe as well as having a sinus infection.  So I am very grateful and appreciate the effort that it took for him to did that!

I’m also on another round of antibiotics – but at least I am able to go to work and function.  I’m feeling way better and left work early today so I could come home and rest to be ready for fun tomorrow night.

Plus I’m excited that we have Monday off for President’s Day.  Yes, an extra day off to recoup and shop.  I need to find something to wear to Thanks to You.

So that’s my crazy world – I’m still hanging in and loving’ my church.

Y’all have a great 3 day weekend!!!


Okay, those of you that are under age – just pass on this post.

So – Now that that disclaimer is out of the way -

I was driving home and I realized that my pants were tight.  How did I know – well, our car’s suspension isn’t good and the car was oscillating on the highway.  So much that my tight pants were rubbing along my no-no place … let’s just say it was a very interesting drive home.

To those of you that were eating or drinking – I apologize if you choked.  But … I need to lose weight … or do I?!?!?!?!

I’m trusting you all had a Happy Thanksgiving!  We spent time with my BFF, her family and her husband’s family.  Food was yummy and the company was fun!  Yesterday we had an intimate turkey dinner with another couple (friends & neighbors).  While the turkey was finishing cooking, we watched Friendsgiving.  LOL, animals that are not compatible, but they were and had a great bond, like a bear, tiger and a lion.  That was pretty interesting.

I did wander out on Black Friday.  Not with a shopping purpose, but to see what was going on.  I have to say, with the stores doing their Black Friday sales Thursday night, Friday was actually pleasant to wander around the stores.  I bought a queen set of microfiber sheets for $14 at JCP. I cannot have weight on my legs while sleeping, otherwise my legs cramp from the heaviness.  These microfiber sheets are lightweight and warm!!  I will definitely buy more in the future.

I didn’t go crazy shopping, as I had to get my glasses ordered.  My drivers license will expire on 12/12/12 (yes, I am playing the lottery that day).  So first priority was get the glasses ordered.  As my prescription lenses would be expensive in the bifocals, I ordered the single vision.  That way I can see to pass the eye test.    I should have them by the 6th.  I know, I’m cutting it close … hence the title of this blog.

I’m enjoying my 4 days off.  It’s nice to spend 2 of the days with friends!  I know I need to clean the house and do the large overflowing load of laundry.  But … hahaha …. right now I’m watching McLintock.  This is one of my favorite John Wayne movies … but ssshhhh … don’t tell my hubby!!  Between James Bond and John Wayne … well, you get the picture.

All around Facebook people are posting what they are thankful for – for me, I’m thankful for my faith. my family, my friends, and my life!  I know it’s the start of the Christmas Season and I get a bluesy through New Years … hopefully … it will be different this year!

Here we are … Tuesday again.

I’m happy to report that I am still among the living.   I haven’t had any heavy pressure in my chest, just wiggy eyes.  Hah, so what is “wiggy eyes?”  Well, to me it is feeling like my eyes are rolling around apart from each other.  It gets worse when I eat sweets.  Today at staff meeting, we were celebrating June B-days.  They had mini warm lava cakes.  Yeah, one of my favorite things … so I couldn’t resist.  I definitely paid for it.  After staff I went for a walk, had lunch, then walked again.  My body was all charged up with no place to go as I had to be at my desk.  So I’m pretty tired now.

I’m in the tapering off week.  Tomorrow, I go down to 4 pills … I’ll be happy when I’m down to zero.

My son is getting married in September and I finally made my reservation for the room.  This is the place we are staying.  So I’m excited.  It will be nice to be on vacation.  Now to secure a rental car, when you have no credit card.  Ugh … I’m not looking forward to this part.

Anyway, I just stopped in to say that I am still here.  I’m all wacked out as far as my vitals go … but this too shall pass once the drugs leave my system.

Anyway, y’all have a great week!

Happy Memorial Day!!

Wow, I never thought I’d have such a great weekend, but that is exactly what happened.  We had a girls weekend at a  cabin at Meeks Bay on the West Shore of Lake Tahoe.  From Friday night until Sunday morning, there were 9 of us there.  I know we all had a hesitation about going, as we didn’t know everyone well, but were blessed with such a compatible group of women.  As the weather on Saturday morning was not conducive to go outside, we stayed in.  With staying in, we all did our own thing and were comfortable in the silence of book reading, knitting, sleeping and pedicures.  We found ourselves having great conversations and finding out we had so much in common that the time flew by.  We had so much food, but it was so good!!

On Sunday, the weather cleared up and we were able to take a walk along the beach and took many pictures.

Today hubby and I were able to accompany a group from church to feed the Marines at the Marine Mountain Warfare Training Center.  What an absolute blessing!  I’m so glad we went and spent a few hours feeding them.  When we arrived, they were  training on repelling off the face of the mountain.   Hubby and I went to sit among them as we ate and it was so much fun!   We ended up talking with a Captain from Omaha, NE.

Even though this was an action packed weekend, I feel so relaxed and rested.  I’m so thankful for this weekend and all the gems that I got out of it.

Next up, my childhood best friend arrives on Friday to visit.  I’m excited to see her and her husband!!!

I hope you all are safe and sound after this holiday.  Have a great week!!

Happy Birthday, Hotbun … er … Husband

May 20th is hubby’s birthday.  We’ve spent the afternoon in Reno.  Sparks really, as I had to return rented table cloths to the party rental place.  Since we were there and hubby wanted to eat at Outback Steakhouse, we were going to hang out at The Legends Mall until they opened.  However, once we drove by, there were many cars in front of the restaurant and the front door was open.  So we turned around and went to check it out.  I’m really glad we did.  They were doing a fundraiser for one of the elementary schools.  For $20 each, we got a salad, warm bread, rib eye steak, chicken and mashed potatoes.  After this wonderful food, we then were served a piece of cheesecake with raspberry drizzle.  So worth the $20 as it was all very good!  I love not having a plan and finding the opportunities.   We were able to celebrate his birthday AND help a school buy hand held computers for their students.

After that we wandered to Cabela’s … had a great time looking around.  I love watching the fish in the aquarium.  It’s was interesting as they all came to the window, like I was the fish whisperer or something.  But I just looked down at my shirt and it’s quite colorful and sparkly so they were probably thinking I had food.  HAHAHA … oh well, it was fun talking to them anyway!

We are home now and I’m exhausted.  I’m definitely ready for bed at 8:15pm.

I hope you all enjoy the rest of your weekend.  I’m going to bed now.  Nighty Night!

Happy Mother’s Day to all you Momma’s out there!

So hubby was baptized on April 28th as scheduled.  One of the highlights of our marriage!  Then Sunday was the celebration at our house.  We had around 20+ people here…as our house is small, we all wandered out to the patio (back driveway which is semi-covered) and had a great time!  Many Thanks to my sister for marking the uneven cracks in the cement and for decorating the patio, as well as the new heavy duty card table and chairs!

After that we got to visit for the next couple of days, then she left Wednesday morning.  We left Thursday morning for Thrive, W O W ! ! !  It was an action packed 48 hours, but so energizing and fulfilling.  For those of you that serve in Ministry and/or work for a church, you definitely need to check out Thrive here.  I’m hoping we get to go again next year!!  We had a great time and great freebies!!

We came home Saturday night and picked up muttly from Sushi 4 Lunch’s house – Thanks again for watching our very spoiled dog!!  Then  we crashed the rest of the day.  Hubby had to work in his ministry on Sunday and I continued to rest as I knew I had a full week ahead of me.

I’ve managed to rake the yard, yesterday.  Working in the yard is something I enjoy, however, my back sure doesn’t.  I started paying for it yesterday afternoon, however, today … I am really paying for it.  I wanted to go to church yesterday, since I had to do some job work over the phone and after church I came home with several more things to take care of.  To make matters even more interesting, I had taken a pain pill around noon yesterday … so being at the 4:30pm service was quite a new experience.  Note to self – do not take a pain pill before church.  Although I was pain free!!

Today, I have one more call to make for work and an email – then hopefully I’ll be done for the day and can relax and maybe, just maybe, my back pain will ease up and I can enjoy the rest of the day.

So that’s it … My wild and crazy world is still wild and crazy … and I wouldn’t have it any other way!!

Again, Happy Momma’s Day to all you Mommas out there!

Many things going on

So many things going on, I’m not sure I can get them all written down.  Let’s see, first of all, I’m feeling better.  I don’t think I’m quite 100% however, I am feeling so much better.  I’m hoping this week I’ll finally be fully recovered.

Then hubby got really sick.  I mean really sick to the point of spewing his guts most of last Thursday morning.  I left work early to take him to the doc.  He was feeling achy before Thursday, but the velocity of his getting sick, was more along the lines of food poisoning.  Unfortunately these were too close for the doc to tell.  But he said either way, he picked up a bug.  If it’s the flu it will take a while to recover.  If it is food poisoning, it will can take 3 days up to 6 days to recover.  What I didn’t realize is that  one can have a fever with food poisoning.  It makes sense after the doc said that your body is reacting, not to the bug itself, but the toxins the bug leaves behind.  Therefore, the fever is your body’s natural defense.  Poor guy, yesterday he was feeling a little better, however, he was weak and no energy.  Today he was feeling a little better and overdid it by doing the dishes and cleaning the kitchen.  I made him stay home from his volunteer work so he could continue to recover.  He plans on going to work tomorrow, but again, I told him to take tomorrow’s volunteering night off so he can finally kick this thing.  I felt so bad as he was just burning up with a fever,, achy all over and his stomach hurt so bad!

He’s been planning on getting baptized as a reconfirmation of his commitment to Christ.  He needs to take his class on Thursday night, then baptism is on Saturday afternoon.  On Sunday, we are having an Open House to celebrate this wonderful decision and I am so excited and proud of my hubby.   My sister, his sister and her husband will be here to join in the celebration, so we are excited!

Next week, hubby and I go to Sacramento for Thrive.  I am so excited, as I’ve always wanted to go to Thrive.  So I’m real excited to go with hubby and as a staff member to this great conference.  We’ll be gone at the end of next week and I really cannot wait!!

Since we will be gone, I have to board the dog.  Unfortunately, he’s due for all his shots before I can board him.  So Thursday morning, hubby is taking him to Reno to get shot … hahaha … vaccinated that is.  So much to do to prepare to be gone for 3 days.  Plus getting the house together for the party.  I’m so excited, exhausted and anxious … LOL … so much to do, so little time.

Well, I hope you all have a great rest of the week.