I know, it’s been a long time

The months have flown by and we are now in November.  I have about 1/3 of the house packed and we load the truck on December 6th.  God help me, please!!

As you can tell we are still moving to the Midwest.  This is similar but different from the last times we’ve moved.  Why?  I’m so glad you asked, because I would be in the same amount of completed packing, because I was working full time.  Now it’s due to my body not cooperating with me from Scleroderma.  However, thankfully I march on with help from family and friends!!

This morning while going through my emails I came across an article about Chronic Illnesses.  The article was written by a fellow sufferer of these illnesses.  Mind you, she has Lupus, Sjogrens, & Rheumatoid Arthritis, however, they are all in the same family as my Systemic Sclerosis (Scleroderma).  All of these diseases are debilitating, painful as well as frustrating when one has been an active person.   If you have time, it’s a great read.  You can read it here.

Every point she made is so true.  I was glad to know I’m not the only one feeling this way.  HOWEVER, I must say that I have the BEST set of friends and family.  They don’t judge me for what I can or cannot do.  They are very willing to help me with whatever I need, if I only ask them.

She talks about having to grieve daily over the new daily things she cannot do.  Oh. My. Gosh.  She is so right!!   I know to those that are well, this makes no sense.  But to those of us that suffer, everyday there is a new degree of things that can’t be done.  As I type this, I can see my fingers curving more and more.  I’m not able to spread my hands.  Here’s a test, take a ruler, open your hand and spread out your fingers.  Measure from your thumb to your little finger and note the measurement.  I just did this and I measure 5 1/2 inches.  Weird!!

When my husband holds my hand, if we interlock fingers, his fingers only go to my middle knuckles because the rest are stiff.  Another thing to grieve, not being able to interlock fingers with my hubby.  It’s a sad and scary thing to realize what normal function is gradually slipping away.

She talks about the pain.  Oh yes, the pain.  You know the pain can be a real pain in the a** and it is EXACTLY as she mentions in this article.  What I find frustrating is the FDA in all their infinite wisdom, changed the medication I’m on and limited the amount of pills given at a time.  Not only did they do that, they DO NOT allow refills.  So that means, I have to go to my doctors office each time to get a new script and take it to the pharmacy to be filled.  The ONLY people this hinders are those that have a legitimate reason to be on these medications.  Those that use them to get high, will be able to obtain them some other way.  Can you tell I’m just a tad frustrated?  Oh well, Let It Be as The Beatles sing  OR Let It Go as in Frozen.    Or as her article reads, “Not giving up, but giving up.”  Some would think that is strange, but it really isn’t.  Giving up trying to figure out the whys, what-for, the infinite wisdom of those in charge … etc.  It does make for a better blood pressure reading.

When hubby goes off on something, I just look at him and tell him, I can’t change it.  OR, I don’t have the brain space to deal with that right now.  Which is true!  I now get overwhelmed.  This person who used to be an Escrow Officer handling thousands and millions of dollars now gets overwhelmed and has to stop, breathe and focus my brain and write down what I need to accomplish for that day.  AND not be disappointed that I didn’t get everything on my list checked off.  I spend a lot of time shaking my head at myself.

Her 3 things are very helpful.  I also a fourth thing, which should be my first thing, that is my faith and trust in God.  My fifth thing, which should be my second thing, is my counselor.  Without her, I would not have made it through this year and preparing for this move.

 

 

R.I.P. Lauren Bacall

Another one gone.  She’s lived a long life and such a statuesque lady.  We love watching her movies!  R.I.P. Mz. Bacall.   Bogie and Bacall now together again

I went to Van Gogh and Vino with my friends.  It was so much fun, especially since I have never painted before.  You can check out their website here.  If you have one or something like it near you – GO!!

The night before last, I couldn’t sleep.  I think I had about an hour of sleep that night.  As I lay awake at 3am, I finally took a sleeping pill.  I try not to take one too often as I don’t want my body to get used to it.  Anyway, at 5am, I took a night night pill.  I didn’t wake up until 2pm.  YAY, Praise the Lord I had sleep!!  Last night I slept about 6 hours.  without a pill.  I’ll take it!!  I’ve been up since 5:45am, but that’s okay.  It gave me time to have coffee with my Lord God and work on my devotionals.  It was nice and quiet.   I had quite a bit to journal about, unbeknownst to me!

Not much else going on.  Getting ready to start the ribs for our gathering at a friends house.  It’s so fun to be able to gather.  I hope her hubby isn’t too tired as he gets home today.

Y’all have a great wonder-filled week!!

 

Rest In Peace, Robin Williams

I was stunned, yesterday, when I heard about Robin Williams.  Today, I am heartbroken.  It took a day for the news to sink in.  It seems to me that those with brilliant minds have such darkness within.  I’m so sad to hear the rest of the news today.  I wish they would have left it that he had died.  I don’t want to hear all the details.  Although I do feel so sorry for his personal assistant that found him.

I loved Mork & Mindy.  I’ve watched almost all of the movies he was in.  I would try and watch anything on the tele that he was on.  We were able to see him in person.  He was one of the entertainers in an Andre Agassi’s fundraiser.  He came out in a kilt and did his routine.  Amazing how fast his mind would work to make a situation funny.

I’ve seen a tweet from someone that said these words, “Genie you’re  free.”  No truer words.

My thoughts and prayers to his family and friends.

Ghost Walk

Sunday we went on a Ghost Walk in Virginia City.  There were 9 of us and I know for sure that 7 of us are Christians.  Why do I bring this up?  Well, on the Ghost Walk they give a few of those Electro Magnetic thinga-ma-gigs  that lets you know when a ghost is around.  One of us had this thing and it didn’t go off when the others did.  LOL    If you think about it, we were protected by Jesus during all this.

It was 90 minutes of walking, yes, I walked all the way, up and down hills and up stairs (thankfully the stairs weren’t tall steps) with my trusty cane and my trusty hubby, we walked all this way.  We did stop at each place of interest, so I got to rest for a couple of minutes.

In a ghost walk, one learns more about the history of a place.  I feel it provides the color of the town and all that the city was like many years ago with all the mining, bars, bar girls and all.  You learn about fires in the city, not just one but several.  You learn about the people that rebuild the structures.  You also learn about the people who died there.  Yes, they are part of the ghosts of interest, but when you think about it, their stories are interesting.  Whether true or not, still a sad story for each of them.

We did do a lot of laughing, just because the group I went with are  fun.   I think one of the guys was busy praying through it all!  LOL, how cool!  No wonder there were no shadowy figures.

So if you want to experience a ghost walk and see the lights glow on the thinga-ma-gig and/or see a shadowy figure – probably not a good idea to take a bunch of Christians with you!

Excuse You!

I’ve been wanting to blog about this, but had to wait a few days to keep from ranting.  But with waiting, more things happen and now I have 3 posts to do today.

So this one, “Excuse You!”  –  Do you go into a grocery store or any store for that matter and you are reaching for something and someone comes from the side and grabs something right in front of you?  I wanted to say, “Excuse You!”   But what came out was, “Sorry, Excuse me.”

Excuse me???   I already was grabbing something on the top shelf and someone invades my space like that?  WOW!  What happened to the common courtesy?  What happened to manners?  What happened to people being polite?   Oh. My. Gosh.  People … If I were to do that to you, you would be all upset.

Yes, I wait until someone is done in the dairy case that I need.  But when they pull something out to read the back, then I will say, “Excuse Me” and they move aside so I can grab what I want.  That’s all it takes.  Not shoving them aside to open the door and grab it.

People, People, People – where are your manners?  Use them, you will be amazed how different you will be treated!!

It’s All Good

Today is my boy’s 33rd birthday.  How is that possible?  Yes, that is my baby and he’s 33!!!   *sigh*  All 3 of my kids are in their 30’s.  yikes!!  But it’s all good!   LOL I’m finding I’m more tired each day.  I seem to do less and less things each day as I tire easily.  Plus the fact that I’m here alone 3 days a week, so I don’t have any motivation.  That is due to change in a week.  We are sitting Stomper for 2 weeks.  So I’m excited!!

It’s almost August … how much packing have I done – ZERO.  I’m in overwhelmed mode, but I need to kick my but in gear and start working on it!! It’s monsoon season right now.  Threats of rain and rain and rain.  Threats … Out of the last couple of weeks, it only really rained hard once.  But, there are times I miss the blue sky.  I also miss using the swamp cooler for our cooling system, as once it is a little humid, the swamp cooler doesn’t work.  Although the sunsets are quite beautiful!!

Hubby’s going to work on my bike this week – I hope!  So at least I’ll be able to ride around the block or 2, each day.  Everyone asks if I can balance on a bike …. I guess we’ll find out.  Thankfully I can touch the ground while sitting on the seat.

I’m debating doing a bible study on Monday night.  Would that be too much for me or do I need to do a study before we move?  It is Beth Moore’s Esther.  I’m thinking about it.  I need to check with hubby to see if he’s going to work at the church Monday night or if I will need a ride to and from.  We’ll see.

So, here we are, Tuesday morning.  I’m doing my daily load of laundry.   LOL – how is it possible that we generate a load of laundry each day?  I don’t understand!!  I can honestly say that it’s my hubby as I only wear a house dress, as my skin is so sensitive. A couple of weeks ago, hubby and I went to Sand Harbor, Lake Tahoe.  We’ve been here 14 years and have not put our feet in the lake.  Well, except that one time when we were at Memorial Point and I dropped the keys among the boulders into the Lake.  He was showing me around the lake as we had just moved here.  Yeah, he had to take off his clothes and belt and all (he kept his pants on … as he says, he had to go quick so they didn’t signal that a whale has beached!), go into the lake, which was chest high and then bend over to pick up the keys that were, “Just there, I can see them!!”   I kept saying.  Yes, there are times he married a platinum blonde!  Oh wait, I am …. LOL … well, a platinum blonde salt & pepper one!!

Anyway, a couple of Fridays ago, we went to the lake and hung out for a couple of hours.  It was fun and we need to go back many times before we leave.  After that we went home and got ready to go to the Reno Ace’s Ballgame.  We sat on the first base line and I LOVED it!!  We were so close to the action and you get sucked into the game, all the fun stuff going on and have a really good time.  Yes, that we’ll have to do again … but it needs to be done by August.  We’ll see.

So that’s what has been going on in my world … how is yours?

Dog Days of Summer

It’s been pretty hot around here.  Thankful that it cools down when the sun goes down.  I’ve been busy dog sitting.  I had a puppy for a few days.  It reminded me that I don’t want a puppy … EVER!!!  LOL  Oh.  My.  Word.  “No Bite” was my vocabulary for all 3 days.

Then I had a Westi/mini poodle mix.  We fell in love with this little guy.  He was the perfect size and liked to cuddle.  Now I have a Blonde Cocker Spaniel.  As it’s hot outside and we have no a/c – I called his mom to get the name of their groomer.  He’s getting groomed tomorrow.  I hope that helps with his panting in the house.  I feel so bad for him.  He’s also been a joy.

A friend and I went to the park to visit.  On the way back, there’s a cherry tree, with a note that says, for 20 minutes,  pick all you can.  So we were picking cherries and piling them in our shirts.  It was fun and good exercise for my hands.

Can you believe it is already July?  I have to start packing now so I’m ready in 6 months!!

Our neighbors had a yard sale and hubby got me a Schwinn 5 speed cruiser bike for $10.  We just need to get a tube for the front tire and change a couple of cables and I’ll have wheels!!!  LOL   Now to see if I have balance!!  I’m excited and can’t wait to use it.   Hubby was happy as he was able to get a new full set of camping plates/kettle/etc.  along with table top propane heater and a propane lantern.  Big score at this yard sale!!

Since I haven’t been working, my nails have grown long, to the point that I cannot type.  LOL … I guess I had better think about filing them down.

Well, just thought I’d stop in and say hey!  I’m still here and doing good, considering!  Y’all have a safe and Happy Independence Day!!!