R.I.P. Lauren Bacall

Another one gone.  She’s lived a long life and such a statuesque lady.  We love watching her movies!  R.I.P. Mz. Bacall.   Bogie and Bacall now together again

I went to Van Gogh and Vino with my friends.  It was so much fun, especially since I have never painted before.  You can check out their website here.  If you have one or something like it near you – GO!!

The night before last, I couldn’t sleep.  I think I had about an hour of sleep that night.  As I lay awake at 3am, I finally took a sleeping pill.  I try not to take one too often as I don’t want my body to get used to it.  Anyway, at 5am, I took a night night pill.  I didn’t wake up until 2pm.  YAY, Praise the Lord I had sleep!!  Last night I slept about 6 hours.  without a pill.  I’ll take it!!  I’ve been up since 5:45am, but that’s okay.  It gave me time to have coffee with my Lord God and work on my devotionals.  It was nice and quiet.   I had quite a bit to journal about, unbeknownst to me!

Not much else going on.  Getting ready to start the ribs for our gathering at a friends house.  It’s so fun to be able to gather.  I hope her hubby isn’t too tired as he gets home today.

Y’all have a great wonder-filled week!!

 

Rest In Peace, Robin Williams

I was stunned, yesterday, when I heard about Robin Williams.  Today, I am heartbroken.  It took a day for the news to sink in.  It seems to me that those with brilliant minds have such darkness within.  I’m so sad to hear the rest of the news today.  I wish they would have left it that he had died.  I don’t want to hear all the details.  Although I do feel so sorry for his personal assistant that found him.

I loved Mork & Mindy.  I’ve watched almost all of the movies he was in.  I would try and watch anything on the tele that he was on.  We were able to see him in person.  He was one of the entertainers in an Andre Agassi’s fundraiser.  He came out in a kilt and did his routine.  Amazing how fast his mind would work to make a situation funny.

I’ve seen a tweet from someone that said these words, “Genie you’re  free.”  No truer words.

My thoughts and prayers to his family and friends.

Excuse You!

I’ve been wanting to blog about this, but had to wait a few days to keep from ranting.  But with waiting, more things happen and now I have 3 posts to do today.

So this one, “Excuse You!”  –  Do you go into a grocery store or any store for that matter and you are reaching for something and someone comes from the side and grabs something right in front of you?  I wanted to say, “Excuse You!”   But what came out was, “Sorry, Excuse me.”

Excuse me???   I already was grabbing something on the top shelf and someone invades my space like that?  WOW!  What happened to the common courtesy?  What happened to manners?  What happened to people being polite?   Oh. My. Gosh.  People … If I were to do that to you, you would be all upset.

Yes, I wait until someone is done in the dairy case that I need.  But when they pull something out to read the back, then I will say, “Excuse Me” and they move aside so I can grab what I want.  That’s all it takes.  Not shoving them aside to open the door and grab it.

People, People, People – where are your manners?  Use them, you will be amazed how different you will be treated!!

It’s All Good

Today is my boy’s 33rd birthday.  How is that possible?  Yes, that is my baby and he’s 33!!!   *sigh*  All 3 of my kids are in their 30’s.  yikes!!  But it’s all good!   LOL I’m finding I’m more tired each day.  I seem to do less and less things each day as I tire easily.  Plus the fact that I’m here alone 3 days a week, so I don’t have any motivation.  That is due to change in a week.  We are sitting Stomper for 2 weeks.  So I’m excited!!

It’s almost August … how much packing have I done – ZERO.  I’m in overwhelmed mode, but I need to kick my but in gear and start working on it!! It’s monsoon season right now.  Threats of rain and rain and rain.  Threats … Out of the last couple of weeks, it only really rained hard once.  But, there are times I miss the blue sky.  I also miss using the swamp cooler for our cooling system, as once it is a little humid, the swamp cooler doesn’t work.  Although the sunsets are quite beautiful!!

Hubby’s going to work on my bike this week – I hope!  So at least I’ll be able to ride around the block or 2, each day.  Everyone asks if I can balance on a bike …. I guess we’ll find out.  Thankfully I can touch the ground while sitting on the seat.

I’m debating doing a bible study on Monday night.  Would that be too much for me or do I need to do a study before we move?  It is Beth Moore’s Esther.  I’m thinking about it.  I need to check with hubby to see if he’s going to work at the church Monday night or if I will need a ride to and from.  We’ll see.

So, here we are, Tuesday morning.  I’m doing my daily load of laundry.   LOL – how is it possible that we generate a load of laundry each day?  I don’t understand!!  I can honestly say that it’s my hubby as I only wear a house dress, as my skin is so sensitive. A couple of weeks ago, hubby and I went to Sand Harbor, Lake Tahoe.  We’ve been here 14 years and have not put our feet in the lake.  Well, except that one time when we were at Memorial Point and I dropped the keys among the boulders into the Lake.  He was showing me around the lake as we had just moved here.  Yeah, he had to take off his clothes and belt and all (he kept his pants on … as he says, he had to go quick so they didn’t signal that a whale has beached!), go into the lake, which was chest high and then bend over to pick up the keys that were, “Just there, I can see them!!”   I kept saying.  Yes, there are times he married a platinum blonde!  Oh wait, I am …. LOL … well, a platinum blonde salt & pepper one!!

Anyway, a couple of Fridays ago, we went to the lake and hung out for a couple of hours.  It was fun and we need to go back many times before we leave.  After that we went home and got ready to go to the Reno Ace’s Ballgame.  We sat on the first base line and I LOVED it!!  We were so close to the action and you get sucked into the game, all the fun stuff going on and have a really good time.  Yes, that we’ll have to do again … but it needs to be done by August.  We’ll see.

So that’s what has been going on in my world … how is yours?

To The Inconsiderate Ass-hat!!

I just want to thank you for almost running me down.  Are you really that much in a hurry to get to the post office??  I mean really!  I was walking, did you NOT see me crossing the drive, and you still had to pull into the drive, in front of me with your car!!   You just barely missed me!!  I just want to tell you, that I was walking, you were driving, you would have still beat me to the post office.

I have never come so close as to beating you with my cane as I did today!!   JERK!!!

Dog Days of Summer

It’s been pretty hot around here.  Thankful that it cools down when the sun goes down.  I’ve been busy dog sitting.  I had a puppy for a few days.  It reminded me that I don’t want a puppy … EVER!!!  LOL  Oh.  My.  Word.  “No Bite” was my vocabulary for all 3 days.

Then I had a Westi/mini poodle mix.  We fell in love with this little guy.  He was the perfect size and liked to cuddle.  Now I have a Blonde Cocker Spaniel.  As it’s hot outside and we have no a/c – I called his mom to get the name of their groomer.  He’s getting groomed tomorrow.  I hope that helps with his panting in the house.  I feel so bad for him.  He’s also been a joy.

A friend and I went to the park to visit.  On the way back, there’s a cherry tree, with a note that says, for 20 minutes,  pick all you can.  So we were picking cherries and piling them in our shirts.  It was fun and good exercise for my hands.

Can you believe it is already July?  I have to start packing now so I’m ready in 6 months!!

Our neighbors had a yard sale and hubby got me a Schwinn 5 speed cruiser bike for $10.  We just need to get a tube for the front tire and change a couple of cables and I’ll have wheels!!!  LOL   Now to see if I have balance!!  I’m excited and can’t wait to use it.   Hubby was happy as he was able to get a new full set of camping plates/kettle/etc.  along with table top propane heater and a propane lantern.  Big score at this yard sale!!

Since I haven’t been working, my nails have grown long, to the point that I cannot type.  LOL … I guess I had better think about filing them down.

Well, just thought I’d stop in and say hey!  I’m still here and doing good, considering!  Y’all have a safe and Happy Independence Day!!!

How am I

Well, since I’ve decided not to do the Cytoxan I’ve been wandering around the world wide web and am finding a few things that will help with my lung situation.  Doing a search for Natural Scleroderma treatment, Curcumin was one of the front runners.  It is supposed to help with the scaring, including my lungs.  Curcumin is found in Tumeric.  So every night I make myself a tea, consisting of Tumeric, Ginger and cinnamon as well as honey for a sweetener and almond milk.

My trial results on how I feel after drinking this for a week:  I can almost straighten my arms.  There is just a slight bend in them and my skin doesn’t feel like it’s going to rip when I do this.  The Scleroderma started to go above my elbows and it was difficult and hurt to bend my arms and try to bring my hands to my shoulders.  I can’t touch my shoulders yet, but I can bend my arms so my hands are straight up.  I have slightly more movement in my wrists.  With my palms up, I can bend them back, and bringing them forward, I can go slightly more than straight out – which is a huge improvement.  The biggest thing I have noticed is that I’m not coughing as much AND I can take a deep breath without choking.  The coughing/choking is due to the scarring in my lungs.  It doesn’t help that I also have it in my esophagus so my throat area feels stiff, but I am taking medication for this.

Let me be clearI AM NOT SAYING THIS WILL WORK FOR YOU OR ANYONE ELSE WITH SCLERODERMA – What I am saying is that for ME, I am noticing minor improvements with my symptoms which  I am praising God for, as He created all things and if this is something that will work, I will try it.

There are side effects (as in all things) to taking Tumeric.  It can affect your liver.  So I pretty much drink a cup of the tea at night before bed, when my body is trying to repair itself.  I drink nothing but water now, to help flush out my system so there is no lingering stuff in my that could cause damage.  I only drink filtered water from the Britta pitcher as I don’t want to drink the added minerals in the bottled water.

As for diet, well, I’m not real strict with that.  With limited funds, I cannot go crazy on a Paleo or Veggie diet, so … moderation is what I’m trying to do.  I can say I don’t have much 0f a craving for sweets.  Maybe an ice cream cone, as it’s pretty hot here in this non-air conditioned house.

Today I hooked up the portable swamp cooler.  I love that it keeps the front area of the house cool, however, it is so loud.

So that is  my world as of today.  I hope you all have a great week!!

Now the big drum roll

The results of my CT scan shows that Scleroderma is in my lungs, affecting 3 lobes, hence the 25% loss of lung function.

With little known about this disease, the only thing my Rheumy could suggest was Cytoxan, which is a Chemo drug.  Yes, it will bring all the side effects with this and  … AND … no guarantees this will work on slowing down the progress in my lungs.  With a possibility that it will give me cancer in another organ.

Friday, I was a mess.  Yesterday I decided that the odds were NOT good and I was not going to go on this drug.  If it did not work, my body would be screwed up even more than it is and my immune system would be nil, therefore, I would not be able to be around the grandkids.  So …. NO …. I am NOT going to do this drug.

The other alternative he gave me was to go to UCSF for a second opinion on treatment.  I’ve done my research and the clinical trial at UCSF is the Cytoxan for one group of people; the other is CellCept (another drug that will mess you up).  No thanks.

I know my docs with the hippocratic oath they have taken will not like my decision, but I am searching for a more natural treatment.  I know I have to be careful with herbs and things that will support my immune system, because my immune system is already working overtime attacking my body, so there is quite a bit of caution I need to heed.

Worst case scenario – whatever natural remedy I decide to do, doesn’t work, I have had a better quality of life than putting toxins in my body being isolated in bed.

Yes, somewhere down the line I will be going on oxygen, but that time is not here and I’m not going to worry about that until the time comes.

I could tell my Rheumy did not like giving me this information.  He’s even surprised how rapidly this disease is growing.  But, I have faith in God and I ask Him everyday to guide me in my research process.

Drum Roll Please

Okay, maybe just a small one – I’ve been complaining about breathing or not having enough of air or feeling that something is hindering my breathing – The doc did a breathing test yesterday and I’ve lost 25% pulmonary function.  That is why I get tired, as my reserves are not there.  He also said that it is a good thing I’m not working, so I can rest when I get fatigued and if I have a down day, to rest.  Pushing myself on a down day is not good as I would be worn out and it would take longer to get better.

But … with that said, I’m to stay active  … one of the things I do, if I’m not active at home, I’ll walk around a block.  The fun thing I’m doing is dancing to a cleaning mix on Spotify.  I try not to put too much stress on the knees, but I get my heart a racing.

A dumpster was delivered to my house yesterday.  So I had better get back to going through boxes!  Ugh.

Y’all have a wonder-filled day!!

Walking through Mud

That is how I feel.  It is taking everything I have to move.  Not sure what that is about.   I’ve had a sore throat for a week now.  I did a candida spit test and I have candida, but not as much as I thought I would have.   I probably should have taken the test BEFORE I started the Candida Cleanse.  HAH – I always do things backwards – no wonder my body does the same.

Listening to The Black Atlantic as part of the coffee house music on Spotify.  I should really get up off my rear and accomplish something, but I’m not sure I am able.  I have one thing crossed off my list today, not a good start as it’s 11:26am.

I watched The View to see Barbara Walter’s last show.  I have her special set for the DVD – I don’t know why, maybe it’s just a part of history in the making.  It is interesting to see how many women she opened the door to be a news person.  HAH, after the show, the ladies on our local ABC channel commented about why they weren’t there.  I yelled at the Tele and said because you aren’t that good!!  The whole daytime news team (which includes 1 male)  can’t read a script.  Sad Sad Sad!!

The local CBS channel morning news team, oy … when this person arrived, she couldn’t figure out which camera to look at.  Of course, I yelled at the tele – Hello, look at the camera with the light on top!!  Sometimes I wonder if it’s the producer messing with her, switching the camera back and forth.

I guess with everything, standards have ‘laxed.

Well, time to start checking off items on the list  Lord, help me!!