Happy New Year, 4 days late

I started the new year with a bang – sick – again!  I am not amused nor amazed!  Of course, hubby is worst than me.  All I can say is – Not. Again.

I was so happy to say goodbye to 2013.  It was a rough year, starting from the beginning.  I had high hopes that 2014 would be better, that is until we came down sick.  There’s an awful flu going around that can turn into viral pneumonia.  I’m worried that is what the hubs has.   Being viral, well, not much they can do.  He’s been on antibiotics to keep any infection at bay, but his ribs are hurting evrytime he coughs or sneezes.   He does have the strong cough syrup, I may give him another dose so he can sleep.

Looking out my window, the sky is blue and the sun is shining bright.  I have the front door open to let some air in.  I really just want to go out there and wander.  My knees are not letting me do too much wandering these days.  They hurt and I wince, sometimes scream, when I have to move them.  I’m not thrilled that the right knee is getting as bad as the left.

The time is getting closer for the new grand-baby’s arrival.   I can’t wait to meet this little bundle of joy.  Thankfully both mom  & baby are doing well.

Not much else is going on from this side of the computer.   I hope you have a great weekend!

 

Almost Christmas

Christmas is so close.  I know the next couple of days will fly by as we have 5 Christmas Eve services between Monday and Tuesday evening.  Thankfully, we are closed on Christmas AND there are no services next weekend for Volunteer Appreciation Weekend.  It takes many volunteers to put on a service, not to mention an additional 5 Christmas Eve Services.  I’m not sure hubby will know what to do with a weekend off.

I wasn’t going to put up our little tree.  When I walked into the house Friday night, hubby had our little 2 foot tree up.

2013 tree.

He did a great  job.  I guess you can tell what movie I’m watching on the tele – “A Knights Tale”   HAH!

Yesterday, I went with a couple of friends to S4L’s house.  She had a class on Essential Oils.  I’ve  learned quite a bit and look forward to learning more!  Scleroderma has made a mess of my skin (among other things).  After 3 different oils rubbed into my hands and 2 different ones in my water, this morning my skin felt calmer and some of the weird scaly spots are not as bad.  The interesting thing the instructor had mentioned is that most auto-immune diseases are caused by an over abundance of Candida in the body.  What she said made sense and it would definitely be worth checking this out.  As I’m still within the 1st year of this disease, what if this cures it?   I’m all for that!!  I must say that I was exhausted when I got home.  Not sure if it was drinking information from a fire hose or the oils working in my body.  Today, I’m vertical, which is a great thing!

The new medication I started on Friday, can cause facial muscle twitches, seizures and more lovely neurological side effects that I’m not too thrilled about.   Plus another future medication is a mild form of chemo.    I’ll let y’all know the progress as I venture on this new path of Essential Oils

Later today we are going to S4L’s house for a gathering.  It will be fun, as this will be the last time I get to see her and her family before they leave to visit her family in Seattle.  It’s a potluck so I’m going to make Mac & Cheese.  LOL, hopefully it will turn out as I haven’t made it in quite some time.

I wish you all a Merry Christmas!!  Have a great time with you family and friends and hopeful in the perfect gift that was given to us over 2000 years ago!!

Love you all!

 

Dog, Yard & X-rays

We’ve been dog sitting a Cocker Spaniel this past week.  His mom and dad come home sometime on Saturday and they’ll pick him up on Sunday.  I’ve really enjoyed having this dog around.  He is such a good boy and so loving.   Hubby just told the dog that he can’t tell his parents what we let him do.  LOL, yes, we’ve spoiled him.  Hopefully he’ll adjust to being home quickly.

One of our friend’s son needed extra money to get his phone fixed.  We had him over to rake the back yard as neither hubby nor I can do the yard.  It’s difficult with his messed up tendons in his elbow and my ridiculous disease.  He did a great job!!!

I’ve written my speech and now I need to memorize it.  It didn’t turn out like I thought it would, but I think it will be interesting.

I know my hubby tries to be supportive in all that I’m going through, but sometimes things get a little too overwhelming for him.  The other day his anger and frustration about not being able to fix it came out.  I feel bad as neither of us can do anything about it, just wait and see what’s next that the doc has to treat.  I now have to get X-rays on both knees.  It is never a dull moment in my world.

I’ve found a Vegan Blog with yummy sounding desserts, well yeah, it also had food, but I miss desserts!!  I got onto this blog because last night I had Kung Pao Tofu at the Chinese restaurant in town.  It’s now my new favorite thing to order there.  So I was trying to find recipes to make it at home.  I’m really missing  my sweets.

Anyway, thought I’d stop in and hear myself talk!  Y’all have a great weekend!!!

 

 

No title, just thoughts

I don’t remember if I mentioned that I joined Toastmasters in my area.  I’ve been enjoying the time and the people.  October 2nd, I do my first speech, which is an ice breaker speech.  In other words, I get to talk about me … all about me!  LOL, after doing this blog for many years, one would think that I wouldn’t have a problem with that.

How much do I reveal or how little?  The speech is about 5-7 minutes.  How do I talk about me for 5-7 minutes.  LOL … I’m sure I’ll come up with something.

Do you ever feel like you’re losing the cushion in your knees?  That’s what is new with me.  We are dog watching a cocker spaniel for a week.  I took him for a walk last night and had to stop and sit a couple of times at the park.  I’m glad he is an older dog, so he wasn’t pulling, but he still wanted to go faster than I.  As I write this, he’s laying on the floor wanting to go for another walk, but it is windy and cold outside, I don’t think we’ll be going anywhere, except outside in the back yard.

I think dog sitting is the way to get my doggy fix!  We get to love on them for the time we have them and return them when their owners come back.  So far this is our second time dog sitting, of a different dog.  In October we get to watch a mastiff who is a gentle giant.  I’m really looking forward to that as I have always loved big dogs.  In November, we may be watching another, during Thanksgiving.    It is pretty interesting how attached I get to these dogs.  Then again, it is also interesting how I can let them go when their owners return.

I’m hoping we will have a Fall, longer than normal.  I am ready for the cool weather, but not ready for extreme cold.  I’m not sure how my disease will like being cold.  So this will be a new experience for me.

I’ve had 2 weeks of busy and I’m pretty worn out.  My plan is to do as little as possible.  I hope you all have a great weekend!!

Too Much

I’ve been on a Vegan Diet due to my disease.  Trying not to eat any animal anything, including fish has been interesting.  I haven’t really craved anything, but, sometimes I miss cheese and eggs.  I’m dreaming about crab and shrimp, but so far I’m staying strong and not caving.  (Well, except for a flat bread pizza I had at Chilis.  I had 3 pieces and felt like a slow moving yak!)

I have to admit, that between my medication and this diet, I am feeling so much better.  Plus, I’m not having the strong reaction to my one medication.  I can’t explain it, but reaction is gone.

So this past Monday, I awoke and wasn’t feeling great.  I was feeling tired, but I got ready for work and ended up leaving in the afternoon as I was feeling real weak and tired.  Tuesday, I wasn’t any better, I was too tired to get out of bed.  I didn’t go to work that day.  Hubby had to work, so I was home alone.  I kept hearing, get out of bed and check your blood.  Finally I dragged myself out of bed, check my blood and it was at 80.  The more I moved around, the worst I felt.  I ate breakfast, took my meds and went back to bed.  All day, I still didn’t feel well.  I continued to stay in bed, only getting out to eat and potty.

When hubby got home, I got up and checked my blood again, it was at 88.  I tried to fix dinner but I had to eat something as I felt my blood sugar dropping.  When I started to lose my hearing, I knew I was at critical stage.  So I zapped a potato and sat and ate before I went into shock.

While I was eating the potato, it dawned on me.  For the past 3-4 days, I’ve noticed my blood sugar dropping each day.  I saw the reading, knew they were going lower, but it wasn’t registering that I needed to adjust my diabetes medicine.  I take a maximum of 1 pill and 2 of another.  My meds were dropping my sugars to an unhealthy level and I wasn’t picking up on the clue my body was giving me.

That night, after we had dinner, I took 1 glipizide.  The next morning, I was back in the healthy reading and have been feeling better since.

Sometimes I forget to listen to my body and the hints it gives me that it needs attention.  You can bet I am back in tune listening and feeling what it is wanting.

What has your body told you lately, that you haven’t been listening to?  You may find it could save your life.

Happy Independence Day

July 4th – wow – where is this year going?

What are your plans for the day?  As we live in a small town, the park 2 blocks from our house is having a big celebration.  Hubby is home today, which is a rarity.  He usually has to work on the 4th.  So we may wonder down to the park and check it out.  Maybe, just maybe, stop at our neighbor’s house across from the park and hang out with them.  I like walking and not driving on this day!

Have a Happy and Safe Holiday!!!

First Month

My experiences in the first month with Lupus – it S U C K S!!!!   LOL, I felt so lost as everything I had read was such a doom & gloom type of thing.  Yes, it said that many have gone on to live productive lives for 30+ years, but it got me to thinking, if I’ve had this for awhile, how many of those 30+ years have I already spent??  Just one of the thoughts that goes through my mind.

So I actually had to grieve my health.  To give myself permission to feel the loss and sadness of not being able to do what I would take for granted.  So basically, I went through the 5 stages of grief.  I kept going back and forth between anger and depression, one feeding the other constantly, however, until I found a book about the first year of Lupus, by a person who was diagnosed with Lupus in 1999, did I start moving toward acceptance.

In this book everything that I am walking through, physically & emotionally, she has walked through and talks about it in her book.  It’s like having a friend right there with you, letting you know what to expect, however, NOT telling you what to do.  Which is pretty wise on her part as each body is different and unfortunately, Lupus affects each body different.    So I’m getting support through a book, even though many people I’ve come across have said that they know so and so who has Lupus and I can give them a call so you can talk.  I know it is a good thing to have a support system, which I do have, but to have a live support group of lupus fighters, I’m not ready for.  If I get too much info, my eyes glaze over and I tune them out.  So reading this book is a blessing.  I can read as much as I can handle, put it down, then in a couple of days, start up again.

One thing that she says, and unfortunately, I’ve found out myself, is that there will be trial and error.  More like trial and fire!  I’ve been trying to drink more water.  I detest the taste of water.  I know some of you will say there is no taste, but there really is.  So I have to chug it down.  If I have to drink water, I’m a water snob and have to drink bottled water.  Well, we ran out of bottled water and being the stubborn person that I am, wouldn’t drink even the Britta filtered water.  Instead I drank diet soda all day long for almost a week.  Well, my body let me know that it wasn’t happy with that.

Both of my wrists, both of my ankles and the balls of both of my feet felt like someone was stabbing them with nails all at the same time.  I’ve already been in pain, but with that much pain, I couldn’t move and all I could do was cry.  I did take a pain pill, but it was taking forever to get to these areas.    Hubby was the best, when he came into our room to check on me, he saw I was crying.  So he turned everything off in the front room and came to bed and sat with me until the meds took affect.  I now know I cannot do artificial sweeteners.

I had mentioned to one of my friends that I caught a glimpse of the pain Jesus went through for us.  If in my flesh I couldn’t handle it, it is just amazing to me how much He loves us to go through all that he went through for us.

Thankfully my regular doc tweaked my pain meds.  The pain isn’t a debilitating pain/ache.  I can actually move without too much discomfort.  Friday night I actually danced at the concert in the park.  I paid for it later, but after not being able to move without extreme pain for the last 5 months, I was celebrating with dance.   I even made it to church last night!!  I haven’t been in a long time.

So that is my first month’s experience.  I now feel almost normal, but still have to be careful not to over do it.  As the doc is able to manage my pain, there isn’t much he can do about the fatigue.   What my brain thinks I can do, I know I can only realistically do about 1/4 of what my brain thinks.  Dang that inner child!!!

RIP Freddie

Since my last post – I’ve been sick on and off, until the end of February when I got real sick and almost ended up in the hospital.  Pneumonia/Bronchitis – it’s too close to tell exactly which, but doc said either way, the first time I saw him for this, I was so sick that I had to use a walker to walk as I had no strength/energy and I couldn’t breathe.

Almost a month later, I’m able to walk without the walker, but I cannot over do is as my lungs start to burn and I have to sit down or lie down until I feel better.  If I over do it, then I’m down for a day.

Two and a half weeks ago, in the midst of my sickness our dog died.  Unfortunately it isn’t just me, but hubby has  been sick as long as I, so going through the dog dying was a set back as we were up all night holding him until he passed.  It’s like watching a human die.  The gasping at the end and finally the relaxation as they leave their body.    I know some, like my mom, just slowly stopped breathing and slipped away, but there are some that have trouble breathing and do the gasping thing.  Anyway – Freddie’s gone and we will miss him.  One of his favorite places – on this pillow/couch.

Fred

Hubby is getting better but still not strong as he usually is.  We both get winded easily.  I’m about 60% better – the Elders (The head pastors) of our church as well as the Associate Pastor came over to pray over me and anoint me with oil for healing.  It was great to see them and talk to them for a few minutes – I sure miss being around these amazing people!!  I don’t have a picture – but I made them all put on masks before they entered my house.  I’m not strong enough to do a thorough clean in this house – so I insisted on them wearing masks to protect them from whatever may be lingering in our house and from me.

So that has been my time away from this blog.  I hope you are all well and getting excited about Easter this weekend!

How ya doin?

I thought I would answer a couple questions, frequently asked in my comments.

The Theme I’m using in WordPress is Retro-fitted.

As for how to subscribe on the RSS feed – I’m not sure as you all read this blog from different avenues.  Sorry I’m not much help.

I start Tai Chi on Saturday – I just have to remember to get up out of bed for the 8am class.  I’m not sure where it is … so I had better leave earlier.

Is it me or is winter just a bit more wintery than it has been.  I know, I live in an area that has a change of seasons.  However, two to three storms a week is getting a bit much.  I haven’t been driving due to my eyes.  But now that I’m able to see again and I can drive, I won’t drive in snow and ice.  Yes, I’m a wimp, but not thrilled about it and I don’t want to!

Work is busy busy busy.  I’m loving it as I’m getting more involved in different events, but it does mean that my time is shorter to get my work done.  It’s hard to find a healthy balance when so many things are pending and in the air!

We are doing an I Do series at church.  Yes, it is geared for marriages and it starts this weekend.  One of the weekends we are having a comedy night.  I’ve heard the comedian before and he’s hilarious!  The weekend after that will be the Love & Respect Conference.  One of the best marriage conferences around.  It is not geared toward one gender.  They speak both genders language.  If you have a conference near you – take it, you won’t regret it.  If you are single – take it anyway, they give you tools to relate to the opposite sex.  It’s a good relational conference.

I started S.T.E.P. (Striving To Experience Peace) last night.  I’m re-taking the Anger Management class as I missed half of the classes last time.  I really enjoyed it last night and am looking forward to the next 9 weeks.  One of the things I love about our church, they care about helping people get over their hurts, habits and hangups by offering many classes.  I may have to take the Boundaries class again, as it goes hand in hand with Anger Management.  There are so many classes, it’s hard to choose!

How do you get over  your past hurts, habits & hangups?  Let’s face it, one has to recover from Life.  We all are broken and sometimes we can’t get better until we face our brokenness head on.  It’s not easy, but it’s definitely worth it!!

So that’s about it for me tonight.  I’m tired, as usual and ready to go to sleep.  Ya’ll have a great night!